It all starts with words new parents never expect to hear…

“ Life as a typical teenager is hard enough, but when you add Spina Bifida into the picture, it becomes much more difficult. We had a hard time relating to our classmates. Our classmates were busy worrying about who they would sit with on the bus on the way to trips. While we worried if and how we would be able to attend. Our friends were worrying if their shoes were in style, while we were struggling to find a pair of shoes that would fit and support our feet at the same time. Our classmates were discussing camps and sleepovers, while we had to really think through if it was worth going as there were many accommodations needed to make this a reality. We wished that we could have had someone who truly understood our challenges to help us navigate and cope.”